Trick or Treat...Yo Gabba Gabba Style!

Here is a picture of the whole Yo Gabba Gabba gang....

(For those of you without tiny people in your household,

Yo Gabba Gabba is a popular preschool kids show)

From Left: Jordyn, Rory, Davis, Maley, Ashley (Jordyn's cousin), Makay,

Lexis and Stephanie (Jordyn' cousin)

DJ Lance Rock!!!

Baby Foofa!!!

Lexis as Muno and Davis as DJ Lance Rock :-)

Davis LOVES suckers!

New pictures...

The Rory Report

Rory is doing much better! She is actually taking the bottle (THANK GOODNESS!!!) She is still very slow but she is learning. I have had several questions about why she went on formula and not donated milk....It is not MY milk that her system is rejecting, it is the protein in breast milk that she cannot process. The formula she is on now is designed for babies with special needs (Davis was on the same formula after being hospitalized at 2 months old.) Their systems have been through so much trauma that they do not work properly. It is all part of the recovery process and hopefully, like Davis, she will have no problems after her first year.

For me the hardest part about this whole transition was the fact that she was crying because she was hungry and I could not feed her... That's hard for a mom to sit and watch. Now that she is taking the bottle we are finally getting a little bit back to normal around the house... I can even hold her again without making her upset!

Thank you so much for your prayers for Rory!

(Davis is a great big brother)

Tough week

So a lot has happened over the last week...

On Wednesday Rory had more blood in her diaper so her pediatrician advised us to go into the ER so several tests. They took blood, xrays and ran a upper and lower GI live xray. She was such a trooper and smiled at all the doctors but left with bruises on her arms from the needles and broken blood vessels in her eyes and on her scalp from crying so hard.

The conclusion was that Rory's immune system is attacking an allergen in the milk...almost like a poison oak reaction on the inside of her body. It seemed like a simple fix of switching her over to a hypoallergenic/protein sensitive formula...

After 13 hours of refusing food Rory began to become lethargic. Every time we tried the bottle she would scream and gag and finally shut down all together. Doctors were concerned about dehydration and even discussed a feeding tube so finally we began using a syringe to shoot milk to the back of her throat and she would have to swallow it. This went on for about 2 days.

Finally after a lot of crying (both her and me) she began taking a bottle. I am still not able to hold her much or feed her because she gets upset. She is having to learn a new skill so her feedings are slow and she still gets frustrated but we are making progress. It feels a bit like I have a newborn again.

So far her discomfort seems to be gone and she has not had any bleeding. She is also resting better and longer! I think she was in a lot more pain than she let us know about...she is a tough little cookie!

Thank you for your prayers!!

Update

We are still waiting for results to come back on the tests but Rory is doing much better. Ever since I (drastically) changed my diet she has not been having problems. I am not eating anything with dairy or any type of soy (just for fun check a food label...it probably has one of these in it!) The doctors think she might have a protein sensitivity (the same type of problem Davis had.) We will keep working with the doctors to make sure we are on the right track but I am so pleased with her progress already!

Thank you for your prayers!!!

Prayer request...

Hi everyone,
I want to ask for your prayers for Rory. She had blood in diaper yesterday so we had to take her to the doctor. They took xrays and are running tests to try to figure out the problem. Until we can figure out the cause I am on a no dairy and no soy diet just in case Rory has a protein sensitivity. There are a lot of possibilities of what the problem could be so we are checking everything. I am reporting in to the doctor each day with an update until we figure things out. Hopefully it is a simple solution!

Thank you for your prayers for Rory!!

I will post an update as soon as we have answers or more info.