Sunday, October 23, 2011

Tough week

So a lot has happened over the last week...

On Wednesday Rory had more blood in her diaper so her pediatrician advised us to go into the ER so several tests. They took blood, xrays and ran a upper and lower GI live xray. She was such a trooper and smiled at all the doctors but left with bruises on her arms from the needles and broken blood vessels in her eyes and on her scalp from crying so hard.

The conclusion was that Rory's immune system is attacking an allergen in the milk...almost like a poison oak reaction on the inside of her body. It seemed like a simple fix of switching her over to a hypoallergenic/protein sensitive formula...

After 13 hours of refusing food Rory began to become lethargic. Every time we tried the bottle she would scream and gag and finally shut down all together. Doctors were concerned about dehydration and even discussed a feeding tube so finally we began using a syringe to shoot milk to the back of her throat and she would have to swallow it. This went on for about 2 days.

Finally after a lot of crying (both her and me) she began taking a bottle. I am still not able to hold her much or feed her because she gets upset. She is having to learn a new skill so her feedings are slow and she still gets frustrated but we are making progress. It feels a bit like I have a newborn again.

So far her discomfort seems to be gone and she has not had any bleeding. She is also resting better and longer! I think she was in a lot more pain than she let us know about...she is a tough little cookie!

Thank you for your prayers!!

4 comments:

  1. Oh Jordyn, I've been praying for y'all so much this week...but I only knew a fraction of what was going on. So sorry it's been so rough... Praying muchly. HUGS

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  2. Poor little doll... Praying for you all!

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  3. Oh, poor little thing! And poor mommy too! :( I'm glad she is doing better but how hard on you both! HUGS!!!

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  4. Is there a chance you could get donated breast milk? That would seem to be a better choice for her than formula. She sure has been through a lot already. She's a tough little girl.

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